Madison did great with her surgery. The doctors were very surprised with how well she did & we ended up getting to go home after 2 nights! For about a week she would only drink milk & she lost about a pound, but she's been eating really good since then.
We have lots of doctor's appointments coming up in the next few months:
*Gastroenterologist next week - we haven't seen this doctor before, but Madison's ENT referred us because of her acid reflux
*Another appointment with Madison's new pediatrician, Dr. White in August - we changed to Dr. White because she will go to Vanderbilt if Madison is admitted. Her previous doctor did not go to the hospital. Given all of Madison's issues she has had, we felt more comfortable with someone who would go. We had our first visit with her last week, and I really liked her! She has her hands full with Madison!
*Also in August, Madison will have another swallow study to make sure she's not silently aspirating because she hasn't had a clear chest x-ray since she's been born. She will also have a follow up with pulmonology & ENT. Hopefully they will have her next sleep study set up for early October.
*Early September she has to have a hearing test done at Vanderbilt.
*Then in September / October she will be seeing her kidney doctor & geneticist again.
Lots to do!!
On a follow up to an earlier post, Madison has been doing so good with her therapist that comes to the house once a week. She finally started crawling on her hands & knees instead of "army crawling" on her stomach. She's so active now & is pulling up all the time. She loves to stand up in her play pen, crib, or on the couch and walk around. We're hoping to get her walking by the end of August because she's flower girl in a wedding, but still have some work to do on that.
She is saying four words that we can understand: mama, dada, baba (for her cup), and bye bye. I love hearing her sweet voice!
She is doing a lot better on her eating too. She will feed herself a few things with her hands, and today she fed herself some of her lunch with a fork!
She continues to make progress all the time, and I love watching her learn how to do new things!
