Madi had pulmonology & ENT appointments today. We had great reports from both doctors! Pulmonology said she looked great & her lungs sounded good. The medical company should be calling us to pick up her oxygen machine & monitor any day now. We don't have to do a repeat sleep study unless we think she is having issues, and we don't have to go back to the pulmonologist unless an issue comes up or she has breathing issues. Definitely great to mark one doctor off the list (even though we really liked her doctor!)
We saw her ENT next, and her ears & throat both looked good. He doesn't forsee anything needing to be done surgically, we just have to watch the dimple she has on her nose for drainage/infection. On a sad note though, her ENT is leaving to go to Atlanta in February. He has been amazing with Madi & has been with us since she was in the NICU. He has also been in all her surgeries. We are sad to see him go!
I have said this before, but it is so heartbreaking sometimes when you go to the Vandy Children's a Hospital. Madison has come a long way & we have definitely had some scares... But nothing like some of these parents & children have to go through. There was a little boy today who came in with a GI tube & he had a trachea tube/oxygen, and it looked like he was missing a leg. Who am I to feel sorry at times for Madison & what she's dealing with (and what we as parents deal with)? She is growing & learning & improving every day. I worry about kids making fun of her for her glasses & not talking/walking well - she is a blessing & is made just the way God wants her. What we have had to deal with could be so much worse. Sometimes it is really good to get perspective & a reality check.
