Spooky Start to Halloween

We had a spooky start to kick off Halloween last night... Madison had her 3rd "episode."

We always lay her down for bed & she puts herself to sleep. Then after she falls asleep we put her oxygen monitor & oxygen on. (If we try to do it when she's awake she just pulls it off & has even pulled the wires out of the pulsox before).

A few minutes after we laid her down, we heard a really weird noise. Almost sounded like she coughed, but she hasn't ever sounded like that before. So I went and checked on her... she had thrown up everywhere in her crib & was blue again with her eyes rolled back. Jake & I put her oxygen on her & cranked it up. Then when we got her monitor on her, her oxygen level was in the 60s / 70s. It took a minute or two to get her levels back to the 90's. We took her helmet off & she didn't have fever, but her hair was soaking wet.

Jake got her crib cleaned up while I gave her a bath. She just cried the whole time. :( Then I rocked her & she fell right asleep. After that she was ok during the night & woke up fine this morning.

I called her pediatrician & neurologist this morning to let them know what happened. They think that she is probably having seizures, but don't know that for certain. However, they are going to go ahead and start her today on an everyday seizure medicine. I hope that it does help, but I'm nervous about the possible side-effects. (mood changes, agitation, nausea, etc.)

Madison has another EEG scheduled for November 18th, just hoping they can figure out what's going on.

I'm glad she's feeling ok right now & can enjoy Halloween!!