Tuesday, August 19, 2014

Busy people get more things done

Wow - the last few weeks have been crazy busy!! On top of all of Madison's current therapies (PT, speech, and developmental), she is starting OT Friday. She had her evaluation a couple of Friday's ago, and they want to work with her. She still has some sensory issues, needs to improve on her hand strength, and the OT also thinks she has some motor delay.

She is also starting Mother's Day out today! I hope she does well (and is nice to the other kids!!) I will post later this week with how it's going.

She had an urology appointment yesterday to talk about whether she needs surgery to correct her kidney reflux since it has increased from a grade 2 to a 3. They don't want to do surgery right now, but if she gets a UTI or bladder/kidney infection in the next 6 months they will want to do it. (Since she just has one kidney, infections can cause scarring which would not be good). So that was good news!

She also saw her neurologist a few weeks ago, and he wants to do an EEG in a couple of months, and if it's normal (which all of her previous ones have been even after having the seizures), he wants to talk about trying to wean her off her seizure medicine. This of course makes me extremely anxious... but God is in control whatever may happen. (By the way, GHS plays Springfield Friday night & that night last year is when she had her 1st super scary seizure & ambulance ride).

On another good note - she has been off of her acid reflux medicine for about a week now - yay!! One medicine down, 2 to go!

My personal schedule has also increased dramatically, but I don't know how to not be busy, so I don't mind! Between Madison & everything going on with her, church activities/playing keyboard, Mary Kay, and high school volleyball in full swing I'm on the go A LOT! Oh and the last 2 nights Madi has decided she doesn't require much sleep. Grrrr... I do!!! Last night she kept getting out of her bed & we kept putting her back in it for over 2 hours. Finally I just shut her door where she couldn't open it, and she laid down in front of her door & went to sleep. It made me feel bad but whatever works!!


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