Wednesday, December 23, 2015

My three year old is awesome

Have you ever heard, "Terrible Two's? Wait until you have a three-year old." Three-year olds are HARD. Really hard. I know I tend to complain a lot too about this age because having a 3-year old can be frustrating, especially when she can't fully communicate with you (besides the word "No" it seems most days). 

But today I want to just focus on why having a three-year old is awesome, because she will only be three once. 

Like the way she still wants me to cuddle with her, and she will climb up in my lap and say "rock." She's usually on the go too much to stop for anything, so I'm glad when she wants me to hold her. 

Like the way she will nod "yes" if I ask her if she's a big girl, but she will also nod "yes" when I ask her if she's my baby. 

Like the sweet way she clasps her hands together and says her prayers. "God. Tank you. Mama. Daddy. Mama. Daddy. Mimi. Papa. Granny. Pa. (Then tries to repeat after me until the end when she says "A-men" with lots of emphasis and a head nod). 

Like the way she is SO excited to see Jake & I when we come in or go to pick her up. She will run to us & squeal & jump up in our arms. 

Like the way she plays with her baby dolls. She's such a good little mama. She wants to rock her baby, kiss it on the head, feed it, push it in a stroller... It's the sweetest thing. 

Like the way she is starting to recognize familiar places in the car. If we drive close to the bank where Jake works, she will say "Dada?" If we drive past gas stations she says "Mimi?" because the days mom keeps her while I work we meet halfway at a gas station. If we are pulling in the driveway she will say "Home or Dada?"  

Like the way she gets so excited to do her cheer routine. And how she claps for herself when she does it. 

Like the way she will pretend to be a puppy (here lately Rocky, my brother's puppy), and she wants you to chase her around. 

Like the way if she's sleepy she still has to play with my hair. Or if I'm laying on the couch she will come up behind me & kiss me on the forehead. 

Like the way she sleeps, and I try to press pause for a little while... Because she will only be three for a little longer. 






Wednesday, November 11, 2015

Did you know Minions cheer too?

Here come words I never thought I would say... I am a cheer mom. Yes those of you who know me heard me right. Shocking I know! This die-hard ball player who said her child could do anything except hopefully not cheerleading is now a cheer mom. And I couldn't be happier!

A lot of you have seen the pictures & videos of the cheer team Madison is on, the Cheerville Minions. The Minions are a special needs cheer team out of Bowling Green, KY. The Minions are made up of kids of all different ages & abilities. If you haven't seen them perform, you are missing out! This is an AMAZING group of kids who are so much fun to watch. They also have some awesome coaches & helpers. People who take time out of their nights & weekends to work with, encourage, and love on these special kids! Not only do they work on cheer routines, they work on gross motor & strength, and the kids get to play and run.

This experience has been so great for Madison. I've seen such a change in her since she started with this team back in early summer. She has surprised me with how well she pays attention when they are working on routines, and she is doing so much better on doing the cheers/dances/stunts when she is supposed to. Her forward roll has gotten better & she can even do it by herself sometimes. (She still is slow to get up after, but she loves doing rolls! We have to watch her at home because she wants to roll on the hardwood lol). She loves doing the "whip" now & her favorite part of the Whip/Nae Nae is the "bop" part. (Yes they do this in their routine. It's so cute!) I've also noticed her interactions with the kids there are different. She will let them pick her up, hug her, give high fives, hold hands... Things I never expected! She had a UK Cheerleader Barbie, and she will do routines with her & stunts with her other Barbies. She absolutely loves it!!

Madison's first performance was so great. The kids did so well & the feelings of pride and admiration that I had for those kids was more then I can put into words. They had so much courage & determination, and had a huge crowd in Municipal Auditorium on their feet cheering for them. Their second performance was a last minute one they were invited to after someone saw a video from their first performance. The kids went out & did their routine (once again nailing it), and they asked them to stay on the floor. They gave the team a trophy & all the kids medals. Of course I cried because I'm a cry baby, but I saw Madi keep looking at her medal & showing it to everyone. She was so proud of that medal. I don't know if she understood what it was, but she knew she had done something good.

Being on this team is building confidence in my sweet child, and I'm so thankful for the experiences it's giving her that she wouldn't have otherwise. Go Minions!















Wednesday, October 7, 2015

Jesus Calls Us to Suffer & Sacrifice

On Sunday nights at church, I'm in a class called "The Mission:  Joining God in His Work." This past week we talked about how Jesus suffered & sacrificed. Jesus suffered physical suffering on the cross as a necessary part of reconciling humanity with God, but He also suffered loneliness (He was different from everyone around Him, including His family); anonymity (He spent His life overlooked & unnoticed); rejection (throughout His ministry & even at His death by His closest friends and those He came to save); and scorn (He was criticized, slandered, mocked, beaten, spat upon, wrongfully accused, and hung on a cross). Despite all this, He didn't retaliate... I don't think I would do the same in that situation. I'm quick when I'm hurt to hurt others back. But Jesus was silent against His accusers.

Our lesson says:  "Jesus was never granted a pass from suffering. He endured all the pain and indignity common to human life in our world, not to mention the spiritual torment included with carrying the full weight of our sin. Yet, Jesus demonstrated His power by passing through His suffering in victory--and His example inspires us to strive for the same."

Being a Christian doesn't exclude us from suffering. In fact, the Bible promises that we will suffer. However, suffering here on earth is temporary.

"...If anyone wants to come with Me, he must deny himself, take up his cross daily, and follow Me. For whoever wants to save his life will lose it, but whoever loses his life because of Me will save it. What is a man benefited if he gains the whole world, yet loses or forfeits himself? For whoever is ashamed of Me and My words, the Son of Man will be ashamed of him when He comes in His glory..." Luke 9:23-26

Jesus also sacrificed Himself on the cross. The cross was a sentence of ultimate sacrifice. One He willingly chose to carry in unwavering obedience to God.

Jesus also calls us to sacrifice. Specifically to sacrifice our possessions, our relationships, our plans, and our positions.

Possessions:  God doesn't forbid us from having things, but God must have first place in our hearts. If He calls us to get rid of possssions & wealth, then we have to be able to part with those. For me personally, a possession I struggle with (along with a lot of people I'm sure), is my phone. I was thinking today what are the 3 material items I would grab if my house was on fire:  1) wedding ring 2) photo albums / journals 3) phone. It's so hard for our phones to not be beside us at all times. When we lose or misplace or phone, or it's broken, we try to do everything we can to find it or get it fixed. Do we spend that same time & effort with our relationship with God when it's broken? Do we spend more time on the phone or with God / other relationships. I know I'm guilty of being on my phone instead of spending time with family, friends, & alone time with God. Also, along with material possessions is money... A big one for a lot of people. Are we willing to do with our money what God leads? Are we willing to tithe, support ministries, pay it forward, give to those in need, etc.  I feel like Jake & I have both grown tremendously in this area (but we still have a long way to go). We no longer agonize over giving like we tended to in the past (and that was when I was working a full time job). God had always provided & He has always taken care of us. When I suddenly had to stay home with Madison, we had no idea where the money to pay the bills & survive was going to come from. But somehow things always worked out. We continued to tithe & God provided.

Relationships:  The lesson says, "God will have no rivals for our affection... Those who would stand in the way of God's interests in our lives or try to discourage us from obeying Him are to be denied the authority to dictate our direction." Honestly, this one scares me. I know there are times that I put my family, and Madison especially first. Not intentionally or out of spite, but because I feel like I don't have a choice. Add to the equation a special needs child with doctors appointments, therapies, procedures, etc. and being a parent takes a lot of my time. However, I want God to be first. Priorities should be God first, spouse second, and children third. I know a lot of times personally, those can be mixed around in a different order... And it doesn't need to be that way. If I keep God first, my other relationships will be better & stronger.

Plans:  This is the one I struggle with the most. Everyone who knows me knows I am a planner, and when those plans change course, it throws off my day. When things don't go as planned, I don't like it and I have a hard time changing plans once I have them set. From the lesson: "There will be times when following Christ requires us to sacrifice our plans in favor of God's plans. He reserves the right to change any of our plans, including family plans, vacation plans, education plans, retirement plans, financial plans, and even our lunch plans...We submit our intentions to Him each day, surrender our way of doing things to His way, and submit our ambitions & future goals to Him." I know that since I've been married, my plans have drastically changed especially with my job & my child.

Before Madison was born, I had an ideal picture in my head of what her life would look like. She would be born in the hospital with no issues & I would have an easy recovery. She would be greeted with family & friends in our room where I had monogrammed cookies & gifts for those who came to visit. We would go home soon after to our happy, perfect life. She would hit her milestones before all her peers, she would be reading when she was 3 like me, she would already be becoming a star athlete by Kindergarten & be at the top of her class in school. Instead things have happened differently. My plans were drastically changed. I had an emergency c-section shortly after being induced because the cord was wrapped around Madison's neck. She wasn't breathing after birth, and she was whisked away to the NICU while I got stitched up and sent back to my room. I didn't get to hold her until almost 24 hours after she was born. She spent 15 days in the NICU. So instead of spending time & bonding with my child at home while recovering from a c-section, I was constantly on the road, or sitting in the NICU, or the waiting room. We came home & things weren't easy. Madison threw up (projectile) after almost every feeding. We fed her on a strict schedule constantly recording her intake & ounces. At 6 weeks old she had her first hospital stay, with a scary diagnosis of UTI, pneumonia, and possibly meningitis. She was poked, prodded, constant blood drawings, spinal taps, and went home with a picc line where Jake & I had to mix up her antibiotic and administer it to her. She's slept with oxygen because of sleep apnea, had multiple seizures where she stopped breathing, been diagnosed with cerebral palsy & had multiple procedures. She's over 3 & maybe has 75 words she says, doesn't speak in sentences, and doesn't sing songs.

I say all that to say this... Madison's life & our lives because of that is drastically different then I planned. But my ways are not God's ways. He is so much bigger then I can even wrap my head around. And even though my plans changed & I don't have an answer why things have happened like they have... I have learned more about God in the past 3 years then I have my entire life. I'm also not saying that God caused all this to happen, but I do know that He is using this for His glory & that He has a special plan for my sweet, strong, brave little girl. We have had to hit rock bottom and come to a place where we had no choice but to surrender this situation & Madison to Him. There is no way I can navigate the situations we have been in & what the future holds alone. He has been my strength, provider, comforter, healer, and so much more. I can't see the big picture, but He already has our lives planned out. I just have to surrender & trust in His plan.

I can't place limitations on Madison - she has progressed & is doing so well. She's riding a tricycle, running, hopping, pretend playing, dancing, cheering, and sweetest of all - saying her prayers. And I also can't place limitations on God. The sky is the limit, and I want to be obedient & let Him lead. Struggles in this world aren't something to be ashamed of or discouraged about. God is at work in our struggles and suffering & He uses them to spread the Gospel to those who don't know Him and to strengthen others to speak up about Him. Whatever God allows to come upon you, He also determines what it's use will be in drawing others to Him/His purposes.

Wednesday, June 10, 2015

Madison's 3rd Birthday Party & Appointment Updates

Sunday we celebrated Madison's 3rd birthday (even though her birthday is not until 6/18). We celebrated early so Mimi, Papa, and Cameron could be there. She picked out a Doc McStuffins theme. I was thinking all along she would want Minions, so I had to change my ideas, but I think it turned out really cute (thanks Party City & Pinterest)! We had a lot of family & friends there to celebrate, and she had a big time! The kids played in a bouncy house, played on the swing set, chased bubbles, and gave some toys check ups.

Later that night I had to take Madison to her third sleep study. It actually went pretty smoothly. She did great getting everything hooked up to her (it took over 20 minutes), and she slept from 9:30 until we got woken up about 5:15am. Early morning. After we left the sleep study we ate breakfast & then went to PT. We switched PT & OT to the Therapy Center in Hendersonville, and have been so pleased! Madison has done great with her new therapists & works the entire hour!

Monday afternoon we had a meeting with Sumner County schools to find out if Madison qualified for the developmental Pre-K. She does qualify & we got the school we wanted too! She will go
4 days a week for 3 hours a day. She also qualified for speech, OT & PT through the school system, but we will also be continuing private therapy in all those areas.

Tuesday morning we headed over to Vanderbilt for an 8am appointment for autism testing. We were there almost 4 hours. Long morning. But they do not think that Madison falls anywhere on the Autism spectrum. They said they think she has a Global Developmental Delay - which basically means she is delayed in all areas.

It's been a long week, but so far we have gotten pretty good news. Next up...

Friday - Madi will be getting ankle braces to help correct her toe walking & help with her ataxia. She will also wear a weighted compression vest a few hours a day to help with her walk & providing input for her.

July - Brain MRI to see if her Chiari malformation has changed

September - Surgery to repair her PDA. This will require an overnight hospital stay.

We appreciate all the thoughts & prayers this week. Please continue to keep us in your prayers as we have several other things coming up this summer.

















Richmond / DC Trip

Memorial Day weekend Jake, Madison & I went to Richmond, VA to visit my cousin Jessica and her husband, Jeremy. We were so excited to get to spend some time with them & to have a weekend away. I was unsure how the 9-10 hour drive in the car would go with an almost 3 year old, but Madison did really well!

We were spoiled, pampered & cooked for by our amazing hosts & we had a great time! We explored downtown Richmond one day and took a walk along the James River and the canal. Later that day we did some shopping, ate dinner, are were surprised with a couples' massage! The next day we drove up to Washington D.C. and walked around / explored the city. Madi (and Jake & I) had our first Metro ride. We went to the Museum of Natural History - Madi loved the big elephant that is in the lobby, but wasn't very impressed with anything else. We hit a lot of the major highlights like the Capitol (from a distance - it was under construction), the Holocaust Museum, the Washington Monument, Lincoln Memorial, the White House and more! We walked about 8 miles that day!

Our last day in Richmond we just spent time with Jess & Jeremy and had a cookout. Madison got to play at the park & in a little swimming pool. We had a wonderful time & below are some of our pictures!