Madison's 3rd Birthday Party & Appointment Updates

Sunday we celebrated Madison's 3rd birthday (even though her birthday is not until 6/18). We celebrated early so Mimi, Papa, and Cameron could be there. She picked out a Doc McStuffins theme. I was thinking all along she would want Minions, so I had to change my ideas, but I think it turned out really cute (thanks Party City & Pinterest)! We had a lot of family & friends there to celebrate, and she had a big time! The kids played in a bouncy house, played on the swing set, chased bubbles, and gave some toys check ups.

Later that night I had to take Madison to her third sleep study. It actually went pretty smoothly. She did great getting everything hooked up to her (it took over 20 minutes), and she slept from 9:30 until we got woken up about 5:15am. Early morning. After we left the sleep study we ate breakfast & then went to PT. We switched PT & OT to the Therapy Center in Hendersonville, and have been so pleased! Madison has done great with her new therapists & works the entire hour!

Monday afternoon we had a meeting with Sumner County schools to find out if Madison qualified for the developmental Pre-K. She does qualify & we got the school we wanted too! She will go
4 days a week for 3 hours a day. She also qualified for speech, OT & PT through the school system, but we will also be continuing private therapy in all those areas.

Tuesday morning we headed over to Vanderbilt for an 8am appointment for autism testing. We were there almost 4 hours. Long morning. But they do not think that Madison falls anywhere on the Autism spectrum. They said they think she has a Global Developmental Delay - which basically means she is delayed in all areas.

It's been a long week, but so far we have gotten pretty good news. Next up...

Friday - Madi will be getting ankle braces to help correct her toe walking & help with her ataxia. She will also wear a weighted compression vest a few hours a day to help with her walk & providing input for her.

July - Brain MRI to see if her Chiari malformation has changed

September - Surgery to repair her PDA. This will require an overnight hospital stay.

We appreciate all the thoughts & prayers this week. Please continue to keep us in your prayers as we have several other things coming up this summer.